Tenley's Duke appt

This has been such a long time coming. This appt has taken 8 months to get. Our tiny Tenley has suffered since birth. 20 long months we have waited to hear what's causing her so much incredible pain and well we might have an answer. Finally.
We made the 1.5 hour trip to Raleigh and found Duke really quickly. We went inside and was seen almost immediately, even though we were 20 mins early. Well we are use to waiting for an hour after your appt so this was like the royal service to us.
We had the nicest nurse ever. She was slightly in love with Teny. So in love with her that she brought other nurses to our room to meet her :)
We then met with her doctor, Dr V. He was amazing. Listening to everything we had to say and actually taking her issue seriously. Well he wanted a full history on her so we went all the way back to my pregnancy with her and her birth and her first bowel movements.
Well as soon as I said she never had meconium he about lost his marbles. Seriously. Lol
He was so upset that no one cared that she didn't have meconium and that her first bowel movement was at day 7.
He then started asking a series of questions and he is 95% sure he knows what she has.
He says she has something called hirachsprung syndrome. It basically means your butt has no nerves so it can't pass a bowel movement. The only fix for it is to have a portion of her bowel removed and to repair the opening.
She has 2 procedures set up in April. The first one is a rectal biopsy and the second is a green gel that gets inserted in her and then xrayed. She will be sedated for both procedures.
We are just trusting in God that all will be OK. Dr V said we want her to have this because the alternative to this is much much worse. Like CF, cancer, tumors, not fun stuff.
We are greatful that someone is taking it seriously and that someone is trying to fix it and help Teny not be in pain any longer.
I will be so happy once she is no longer in pain. There is nothing worse than knowing your child is in pain and there's nothing you can do about it.
Her first appt is next week so I will be back with updates next week. For now here are some pictures of our trip :)